What is really EB

Provincial Visit Video

You have asked us many times what EB-disease is .
How does it occur and what are its symptoms ?
We have answered your question many times since we founded EB-home.
But now a butterfly patient ‘s mother answers your questions.
Certainly , our narrative of a disease will be different from what a butterfly ‘s mother narrates.
They are balm, companion and with their butterflies day and night .
Maybe , our definition of EB is a queue of words, but the definition of a butterfly’s dear family of the disease is e motion, experience, empathy .
In one sentence, they have touched the problems of this difficult disease.
So watch the butterfly’s dear mother’s speech and make a positive comment on her speech. We hope the butterflies ‘ mothers be full of hope every day .


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